Migraine overview
A migraine is a headache that can purpose intense throbbing suffering or a pulsing sensation, typically on one facet of the head. It's often accompanied with the aid of nausea, vomiting, and excessive sensitivity to mild and sound. Migraine assaults can closing for hours to days, and the discomfort can be so excessive that it interferes with your each day activities. For some people, a warning symptom viewed as an air of secrecy takes location until now than or with the headache. An air of secrecy can consist of visible disturbances, such as flashes of mild or blind spots, or different disturbances, such as tingling on one thing of the face or in an arm or leg and concern speaking.
My experience-Persistent visual disturbances and my (potential) migraine story
Hi all,
About 11 or 12 years ago I began developing visual disturbances, namely persistent imagery such as you might get when looking at a bright light and retaining the object in your visual field for a few seconds when you look away. There were other visual issues such as difficulty tracking horizontally and vertically with a perceptible "lag" where it seemed as though my brain couldn't keep up what I was trying to process. I had many other issues such as bright pin pricks of light occurring briefly and an increased number of floaters. The thing about all this is that the persistent images were constant. The only time I didn't experience them were when I slept.
Over the years my symptoms worsened and became more complex, affecting things such as balance, memory and even general cognitive processing. I would struggle to get up sometimes because I would get hypotensive episodes and feel as though I were about to faint. I developed an episodic stutter and my behaviour and moods became more erratic.
About 6 years ago I was diagnosed with sarcoidosis. After many years trying to get diagnosed and trying medications that did nothing, or being told that it was psychosomatic I eventually got out on prednisolone for the past year after going private and speaking to one of the top neurological sarc people in the country. However he still wanted me to get a MRI and a lumbar puncture done but kept me on the steroids until I had done.
The MRI and LP came up clean. I was convinced however that this was some mild but chronic form of sarc as it was the only logical explanation o had to hold onto after so many years of nothing working. After some back and forward with the local neurologist who did not want to continue treating me as though I had sarc without any objective evidence to prove it, and having taken my family's medical history (turns out migraine is prevalent in my family) he decided to start me on 2mg candesartan. He didn't expand on anything in his letter other than to suggest migraine.
Now, I had previously seen a migraine specialist who started me on lamotrigine but after titration I didn't feel much if any different. I also tried propranolol and saw no benefit. I was very sceptical of this migraine diagnosis and terrified of losing the only therapy that had worked and was finally saving me. And I mean save. I was becoming desperate.
That was in March this year. I am now starting 12mg candesartan after becoming encouraged by the effects the 8mg was having, and will look towards starting 16mg in the next month or so.
Whereas the steroids did improve my symptoms, I am no longer taking them. However, I feel as though the candesartan is improving the symptoms even further. I have more energy, across the board my symptoms are so much better and I'm really dumbfounded. I don't know much of anything about migraine, and I can find almost no information about a type of migraine expression like mine where these visual symptoms are constant. I know you can have migraine with aura and no pain but everything I read speaks of episodes of attacks. I just never had that. But now it seems as though the neurologist was right.
It'd be great if someone who has experience of this type of migraine could talk about their experience. It would mean a lot to speak to someone who understands what I am talking about. It's not easy to describe in words, and there's more than I have written down here, but it's been an awful experience for me, taking me down deep roads of depression and fear, not knowing what the hell is happening to my brain and never being able to escape from it.
I will be seeing the neuro again sometime before year end so hopefully he can help explain this a bit further but I just wanted to reach out and see what came reaching back.
Thanks
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